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Rare Diseases

Health information topics about Rare Diseases:

Dictionaries/Glossaries

    1. Terms and Definitions
    Office of Rare Diseases
    http://ord.aspensys.com/asp/resources/glossary_a-e.asp

Directories

    1. Other Sources of Rare Disease/Orphan Product Infor
    Food and Drug Administration
    http://www.fda.gov/orphan/rdid/

    2. Genetic and Rare Diseases Information Center
    Office of Rare Diseases
    http://rarediseases.info.nih.gov/html/resources/info_cntr.html

Law and Policy

    1. FDA Fights Rare Diseases: New Help for Patients wi
    Food and Drug Administration
    http://www.fda.gov/opacom/factsheets/justthefacts/10orph.html

National Institutes of Health

    1. Rare Diseases Terms
    Office of Rare Diseases
    http://ord.aspensys.com/asp/diseases/diseases.asp

    2. PubMed Search
    National Library of Medicine
    http://www.ncbi.nlm.nih.gov/entrez/

Organizations

    1. Food and Drug Administration, Office of Orphan Pro

    http://www.fda.gov/orphan/

    2. Office of Rare Diseases

    http://rarediseases.info.nih.gov/

Research

    1. About the Human Genome Project
    National Human Genome Research Institute
    http://www.genome.gov/page.cfm?pageID=10001772

Treatment

    1. Orphan Products: Hope for People with Rare Disease
    Food and Drug Administration
    http://www.fda.gov/fdac/features/2003/603_orphan.html

    2. OOPD Frequently Asked Questions
    Food and Drug Administration
    http://www.fda.gov/orphan/faq/index.htm

    3. Gene Therapy for Cancer: Questions and Answers
    National Cancer Institute
    http://cis.nci.nih.gov/fact/7_18.htm


 

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